Challenge Accepted

A few months ago Penny had an appointment scheduled for a cheese challenge. After having experienced a mild contact-reaction to cheese in her school, I decided that the Cheese Challenge was off the table (for now!). However, Penny’s allergist wanted to see her to follow-up on that reaction. At that appointment, Penny had a penicillin challenge instead.

When she was only one year old, Penny had to take penicillin for a bacterial infection. Twelve hours after the first dose, her little fingers and toes started swelling. That swelling later spread to the arms and legs. She was immediately taken off the penicillin and treated for the allergic reaction. Since then, different kinds of antibiotics have had to take care of her recurrent ear infections.

That day, 3.5 years after, her doctor decided that it was time to see if she had already outgrown the penicillin allergy. First, the nurse administered a small amount of the penicillin in her skin with a needle. If her skin turned red, itchy or raised bump, that would mean that she was still allergic to penicillin. Penny passed! Then, the doctor gave her a dose of penicillin to confirm that in fact, the skin reaction was really negative. Again, Penny passed with flying colors!

This is an exciting new step in our lives. Fewer allergies, less worry, more happiness.

What’s next? An almond challenge! Stay tuned, I will keep you posted.

Challenges

It was the day before Penny’s 1st Dairy Challenge. A dairy challenge, in Penny’s case, meant that I would bring a homemade baked good that contained dairy to the Dr.’s office and she would eat this baked good under proper medical supervision- this to ensure that if a severe reaction occurred, the medical staff will have control of the situation. Also, per the allergist’s instruction, Penny had to stop any antihistamines and/or asthma medication 5 days prior to the test.

I got ready: went to the supermarket, got some gluten-free flour, enjoy life chocolate chips, eggs, coconut oil, and the most important ingredients for the challenge: cow’s milk. After everyone went to bed, I stayed up looking for dairy-full cupcake recipes and baked. I’m not going to lie-I was nervous, but positive.

We had decided that the four of us were going to be at the Dr.’s office on this BIG day. Not only to celebrate if Penny passed the challenge but also to give each other support. After all, isn’t that what family is all about?

On the day of the challenge we were there at 7:45 am. Penny was called in at 8:00 am. After having been examined for her asthma and everything else (height, weight, changes in health, etc), the Dr. ordered her to start eating the cupcake. First, they gave Penny ¼  of a teaspoon of the cupcake, slowly increasing the quantity every 15-20 minutes until she had eaten about ¼ of that cupcake. There was a high level of supervision throughout the whole challenge. The nurse would come in the room every 3-5 minutes to check on her, and to ensure that everything was alright. This gave me a sense of security- that if anything happened she was going to be ok. An hour and a half later the challenge was completed, and Penelope had successfully passed. In the weeks to follow, I had to slowly increase the portions (of a cupcake) that Penny ate by ½ every week until she tolerated 1 whole cupcake. This was a breeze; she loved the taste of the cupcake and never had a reaction. I came to understand, at this point, that the treatment that the allergist chose for Penny is called Oral Immunotherapy (OIT). Oral immunotherapy is a treatment that induces the immune system to tolerate a food that a person is currently reacting to. It involves introducing the food that causes the reaction to the person’s system in gradually increasing amounts, with the goal of allowing the person to eventually consume the food without experiencing a reaction.

From now on, Penny had to eat a dairy-full baked good daily. I got creative and baked bread, cakes, brownies, cookies, etc. Eating these baked goods for a month and a half was preparing Penny for the next step: a Yogurt Challenge. Seeing Penny eat things with dairy made me so happy. For 3 years her diet had been restricted, and thinking that she was going to be able to add more things to her diet and potentially eat anything with dairy altogether is pretty exciting.

Her yogurt challenge was scheduled two days after Christmas. A few days before, Penny, Paulo & I went to the grocery store in search of a good vanilla yogurt. Fast-forward 2 days and it was Challenge Day.

Just like the 1st time, we were there early in the morning. This time, I brought her breakfast to eat after the challenge was over. Around 8:30 am, the yogurt challenge began. She had ½ a teaspoon of yogurt. No reactions. Then, about 10-15 minutes later, she had 1 teaspoon of yogurt. Still, no reactions; however, Penny started complaining saying that her stomach hurt because she was hungry. Twenty minutes later, she had a tablespoon of yogurt. This time, a few hives appeared on her face, but after washing her hands and face, the hives went away. Again, according to Penny, the only thing bothering her was that she was hungry. The allergist walked in about 20 minutes after she had the tablespoon of yogurt and since she was cruising through the whole thing, he said that Penny could eat as much as she wanted. She was so happy and she kept saying: “Mommy, this yogurt is so YUMMY!”

Another 20 minutes had gone by. The allergist came back into the office, checked on her and was ready to discharge her with a successful challenge. Then all of a sudden, Penelope developed a cough. The allergist and I kept talking about the next steps to take, and I told him that she wasn’t coughing before, so he said that he was going to keep her in the office for 10 more minutes to see what was going on. I was fine with it: “better safe than sorry”. He also said that Penny could have the breakfast I had brought since she kept complaining about being hungry. She had one bite of her pancake, and then said she didn’t want any more. This was strange. As time passed by, her cough was more frequent, and her energy levels were dropping. She started telling me that she wanted to go home and that she wanted daddy. My husband and son wanted to be there for the challenge, but were both sick with a cold, and decided to wait for us outside.

The nurse came in and stayed with us, checking on Penelope constantly. I asked her to, please, check her lungs for wheezing. She said Penny wasn’t wheezing. At this point, Penny was curled up in a little ball in my lap. Then, as the nurse was going to step out of the room for a second, Penny coughed, but this time at the end of her cough, you could hear the wheezing. The nurse looked at me and asked me if I heard a wheeze. I certainly did. From that moment on, everything felt like it was going downhill: she was in anaphylactic shock. Her wheezing was very loud, and she was struggling to breathe. The nurse called other nurses for help and got the allergist to walk into the office. Penelope was connected to a blood oxygen saturation monitor. My head felt like it was spinning; I kept looking at the monitor: her heart rate kept going up and her oxygen levels kept dropping. I was desperate and felt helpless at the same time.

The allergist looked at Penny and ordered epinephrine be given to her. One of the nurses raced off to another room and came back with a syringe containing the epinephrine. Even though it had only been minutes since she started having the reaction, it felt like hours. Not even a minute after the epinephrine was given to Penny, everything started to change. Her breathing slowly normalized, wheezing subsided and Penny started looking better. Once she started feeling better, she also started having nausea, and eventually threw up the yogurt. At least she didn’t have what was making her sick in her stomach anymore. To be exact, 6 minutes after epinephrine was given her oxygen levels were back to 100%. The doctor ordered the nurse to give her oral steroids to avoid a biphasic reaction. A biphasic reaction occurs anytime from 1 hour to 72 hours after the initial reaction and can happen without any allergen exposure. He also ordered antihistamines because her throat was itching.

By the time my husband was able to make it to the room where we were, Penelope was stable. Everything happened so fast. We left the allergist’s office 4 hours after with instructions to keep giving Penny dairy in baked goods. I’m not going to lie, I was afraid that she was going to have a reaction to baked goods after the severe reaction, but she was fine.  The next step: a Cheese Challenge next month. How do I feel? Scared, but this is the only way we are going to know if her dairy allergy will ever be cured.

This has been one of the most difficult experiences I have ever lived. It left me heartbroken, and it has been difficult even to talk about. I know Penny’s all right and that everything is O.K., but I am still healing. I am grateful to know that epinephrine can save her life if used as the first line of treatment for anaphylaxis, and most importantly, I am hopeful that Penny will be able to surpass this.

 

 

Baby Steps…

If you are part of a F.A. family, you know how hard it is Eating out with Food Allergies. By default, the first thing I do is to make a call directly to the Restaurant. So, when last Thursday I was craving pizza I made a few calls to different pizzerias. As most of you know, we avoid peanuts, tree nuts, dairy & gluten. As luck would have it, there was a pizzeria that had a dairy-free, gluten-free pizza and when I called they assured me that they could make it without cross-contamination. They explained that they used Daiya Cheese & their Gluten Free crust was also dairy-free.

I am not going to lie, even when the restaurant assured me that they can work around my children’s allergies, I still feel doubt and anxiety. It’s so easy to have cross-contamination, and talking by experience, not everybody knows how to handle food allergies.

Anyway, I braved up and off we went. Once we arrived, we wiped down the table and seats to make sure there wasn’t any allergen residue that could’ve started a reaction. Then, I talked to our waitress and explained the severity of Penny’s allergies. She said that she would make sure that the cooks would clean the area and change gloves before preparing my kiddos meal, avoiding cross-contamination.


The pizza was delicious & my kids were able to enjoy pizza in a different environment, reaction free.What a fantastic experience! No doubt we will be returning soon to Farelli’s Wood Fire Pizza.

Second Opinion: From one Allergy to Another

Not to toot my own horn, but when it comes to food allergies my maternal instinct has helped save Penny from many anaphylactic reactions. Case in point when she was around one my husband insisted that I give Penny Peanut Butter since it’s a good source of protein, plus we loved eating it. However, something in my head kept telling me not to. I kept telling him, “Honey, what if she’s allergic to it?” and he always replied, “Nobody in our family is allergic to peanuts, why would she be the exception?” Well, let’s say I was pretty head-strong with this and never gave in.  Penny turned one and we discovered her dairy allergy. It was then that I insisted to the Doctor to do an Allergy blood test panel to see if she had any other allergies. Guess what? I was right!

Since then we go to yearly allergy visits that consist of blood work, visiting the allergist and, maybe, depending on the result a skin test. Penny’s allergies have been consistently getting higher each year, so this year her allergist decided only to test her peanut allergy. But something inside me was restless, I was not convinced. I wanted Penny to be tested for other allergens because lately she’s had random reactions and we haven’t been able to figure out what is actually causing them.  Long story short, we got a referral from her pediatrician for a second opinion.

Unfortunately, for her first appointment with her new allergist I couldn’t miss work, luckily enough, my husband was on vacation so he took her in. He told me that, since her medical records didn’t make it to the new doctor, the Dr. was, at first, a bit incredulous. To be honest I can’t blame him. I sent my husband to that appointment with 2 pages worth of information on what had been happening for the past year. Well, the allergist did some blood work right then and there and discovered that her allergies were severe. After that, he did a skin test to see why she is having these random allergic reactions and sent her to the lab to get more blood work done.

On the skin test, he tested for peanut, dairy, wheat/gluten, eggs, dust mites, pollen, mold, and pet dander. There were good news and bad news… The bad, her peanut allergy is still severe, and she turned out to be almost equally allergic to dog dander. I have been reading about service dogs that are able to detect allergens in most any forms: raw, cooked, oil, butter, dust, etc.  We have been planning, for the past year to adopt a dog and train it to detect Penny’s allergens. The thought of it gave me peace of mind, but I guess, that is not happening anytime soon. At least we found out before adopting the dog. The good, her dairy allergy has decreased significantly, to the point that the doctor is comfortable enough to do a dairy challenge.

When my husband told me about the dairy challenge I got mixed feelings. I mean, I am super excited that my little one might be outgrowing one of her allergies, but on the other hand, I get anxious when I think about the possibility of her failing that challenge. What if she goes into anaphylaxis? We’ve been through anaphylaxis once, but it was caused by skin contact. I have never seen her have an anaphylactic reaction by ingestion. Then, I tell myself, what if she actually passes the challenge? This means that she will be able to expand her diet. Mentioning the words birthday parties, potlucks, social gatherings, and Halloween would not have to send me into full blown panic and we will be able to go out and eat with a bit more peace of mind. The peanut allergy is still scary but, in my opinion, easier to avoid or manage.

Allergies take you on a roller coaster of emotions. Sometimes you are sad because your child can’t eat or do certain things, other times you panic (especially when you or your child is having a reaction), you can also get happy that you child can’t eat certain things (we eat healthier; we rarely eat processed foods), but overall I am grateful to be able to know what Penny is allergic to and that there is a medication that can save my child’s life in an event of a severe reaction. Life is good!

All I am Saying is Give EMPATHY a Chance

“When you start to develop your powers of empathy and imagination, the whole world opens up to you.”

-Susan Sarandon

         Anyone who knows me knows that I am an advocate for empathy. I don’t believe in judging by first impressions because you never know what kind of day a person is having, or even what kind of life they live. My life is a constant worry about allergies and reactions: What if that child, that Penny is playing with, had peanuts before and didn’t wash his/her hands, and now will touch her and cause a reaction? What if that flour I bought has been tainted with peanut or any other allergen? What if that medication causes an allergic reaction? Should we go to that birthday party or would it be too dangerous to go?  As stated above, things that might be mundane for other people, involve more planning and effort on our part, which makes our day-to-day life a little bit more complicated.

The past 10 months have been challenging in our house. Penny got sick a lot. She developed asthma, and later, she had recurrent ear infections, which lead to surgery. Needless to say, I was scared. Scared not only because all surgeries have risks, but also, since she is so “atopic”, as her pediatrician says, and is not only allergic to some foods, but also to some medication, I was scared of her reaction to the anesthesia. Thankfully, the surgery was successful: ear tubes are in place, and tonsils and adenoids removed.

Ever since that surgery, things started to look a lot better. Then, a few months later, she started to develop some gastrointestinal issues. Penny was having tummy aches, diarrhea, and gagging when eating. We visited a Gastroenterologist, and an endoscopy was performed. Thankfully, she was negative to Celiac Disease, but “borderline” to Eosinophilic Esophagitis (EoE)-the Dr. said they look for a number 16 in the biopsy, and her result was 15, so he couldn’t diagnose her. I had this hunch in the back of my head that the problem was gluten, so after the endoscopy was performed, we started eating gluten free. A few weeks later, all the symptoms disappeared.

Now, since last night, Penny developed a fever. Her symptoms are headache, tummy ache, and nausea. After spending the night monitoring her fever, I called a nurse hotline to figure out if I had to take her to the ER or not. The helpful nurse that talked to me on the phone and asked me about her symptoms suggested that I take her to the ER. So, I did. I took her to the same hospital I’ve always taken her in case of an emergency. Today, she was seen by a resident- I have no problems with residents taking care of us, for our experiences have always been positive. However, after he examined Penny, he told me: “She looks fine. I know you are a concerned mother, and since you have spare time on a Saturday, well, here you are”. It took me a while to realize what this person was telling me… What does he mean? Spare time? Does he really think that I have nothing else to do? I was there because my daughter needed medical attention, not because I had spare time. You would think that a medical professional would be a little bit more empathic towards his patients, especially when his profession entails helping others. And now that I think about it, this is a quality that every single one of us should work on- we should at least try to see the world through someone else’s eyes. Let’s try to keep this in mind. Let’s try to show more compassion before formulating any judgment or ideas.

 

 

 

 

Vanilla Glazed Baked Doughnuts

Doughnuts

Ingredients:

Doughnuts:

  • 1 cup all-purpose flour
  • 1/3 cup granulated sugar
  • 1 tsp. baking powder
  • ½ tsp. salt
  • 1/3 cup & ½ tbsp. non-dairy milk. I used soy milk
  • 2 tbsp. Earth Balance Vegan Buttery Stick (8oz), melted
  • 1 egg
  • 1 tsp. vanilla extract

Glaze:

  • ½ cup powdered sugar
  • 1 pinch salt
  • ½ tsp. vanilla extract
  • 1 tbsp. non-dairy milk. I used soy milk

 

Directions:

  • Preheat oven to 350 °F.
  • Grease the doughnut pan.
  • In a bowl, mix together egg, non-dairy milk, butter, and vanilla extract.
  • In a separate bowl, mix together flour, sugar, baking powder and salt.
  • Add the wet ingredients to the dry ingredients and stir until the mixture is well blended.
  • Spoon the mixture into the doughnut pan.
  • Place the pan in the oven and bake for 10 mins.
  • Remove from oven and allow the doughnuts to cool. 

To make the glaze:

  • In a bowl, mix together the powdered sugar, vanilla extract and salt.
  • Add 1 tbsp. of non-dairy milk to the mixture.
  • When the doughnuts are completely cool, dip them into the vanilla glaze.

 

Enjoy! 🙂

Anaphylaxis

Penny started preschool. What can I say? I think it has been one of my biggest and nerve-wracking decisions, and as much as I would like her to, she can’t live inside a “safe” bubble.  We are so happy to have found a school where her food allergies are taken seriously. The staff is always conscious about what’s going on, and the school even banned peanuts, tree nuts and dairy from her classroom.  In the beginning, I think it was a big shock for a lot of people. They felt, I think, like they didn’t know what else they could bring for snack, but eventually, everybody found ways to feed their kids avoiding those allergens.

 

I am lucky enough to be a teacher in the school where Penny attends. This is a blessing, for I can always make sure that the food that’s served around her is safe and I can detect if anything is causing any reaction. In the beginning months of the school year, she had a mild reaction. Apparently, one of her classmates had dairy as part of their lunch and had not washed their hands properly causing Penny to get redness in her eyes. As soon as I noticed the reaction, I gave Penny her allergy medication (antihistamine), and watched for any other symptoms. Thankfully, she started improving, and the situation didn’t turn into anything big.

 

Well, two months ago, the story was a bit different. While Penny was in music class, I noticed that she was coughing a lot and was breathing with difficulty. I thought it was her asthma acting up to the winter season, so I immediately gave her the inhaler and allergy medication. There were no skin symptoms or any other sign that she was having an allergic reaction, so she went back to her class. I kept observing her breathing and didn’t notice major improvements, so I talked to one of my co-workers. As it turns out, that same person was earlier eating something with dairy and forgot to wash their hands properly.  Then, held Penny’s classmate’s hand, who later, held Penny’s hand. As I’ve stated before, Penny can react to allergens by skin contact and this time the reaction started getting out of hand.

As soon as I understood what was going on, I immediately called her allergist. He suggested observing her closely because the inhaler and the allergy medication can mask symptoms of anaphylaxis. He also told me that if at any moment Penny’s breathing started to deteriorate again, I had to use the EpiPen and head to the hospital. I hung up the phone and went on with our day, as Penny’s symptoms seemed to be improving. I got off work, picked up my son from daycare, and on our way home, Penny got redness in her eyes, she started coughing again and looked like she was having trouble breathing. Thankfully the hospital was on our way, and at that time, less than a minute from where we were. I parked the car as soon as I could, got the EpiPen, told Penny that I had to give her a medicine to make her feel better, and injected her with the EpiPen. Within a minute or less all of her symptoms went away. The redness of her eyes started clearing up, and her breathing went back to normal. We rushed into the ER and explained to them the reaction. She was rushed in to check on her vitals, and fortunately, everything was getting back to normal.

After that, she was kept in the ER for several hours to make sure there were no biphasic reactions, and was later sent home with cortisone, and some other medication.

 

I think this has been the scariest experience in my life. I was frightened seeing that my child was having trouble breathing and I was scared about how she was going to react to the EpiPen. Thoughts kept running in my mind: Was one EpiPen injection going to be enough for her? Is she going to have a biphasic reaction? What if she starts getting sick again when we get home? Was she going to be O.K.? Gratefully, she was fine.

 

I think that every experience teaches us something, and in this case, I learned a few things, one of them being that I am stronger than I think. Also, that I knew exactly what to do and I used the EpiPen correctly. I learned that it doesn’t matter if people know about your child’s allergies, they can forget, so it is O.K. for me to keep reminding them to use safety measures.  Most importantly, this experience reminded me that there is no better advocate for my children than myself.

 

Here we go again… Yearly Food Allergy Testing

Every year, Penny (my severe food-allergic child), has to visit her allergist to discuss her allergies and have a blood test. Then, we wait for the results that determine if her allergies are getting better (in the path of outgrowing them) or if they are getting worse.  When we get close to this date, I try not to get my hopes up, because as it has happened in the past, I get hopeful and then I find out that her allergies got more severe.

This year, I walked into the allergist’s office with little to no hope. We talked about Penny’s most recent reaction when we traveled this summer, discussed what can be done in the future before traveling and established a new emergency plan. Then, the doctor started talking about this year’s blood test and how he thought that Penny’s dairy allergy, which was not too high last year, could have gotten better and depending on the test result we might be able to do an oral food challenge. If the doctor is so hopeful, why shouldn’t I be? I’m not going to lie: I walked out of his office with this feeling that her dairy allergy was outgrown. I was so happy! I kept thinking that I was going to be able to expand her diet and it was going to be easier now.

Well, we went to the lab, got her blood drawn and the waiting game began. A week later I got a call from her allergist… We talked about another reaction that Penny had experienced without any direct exposure to an allergen and then he told me that he had called me to talk about the test results. My expectations were high… and then I heard the following words: “Unfortunately, Penny’s results show that her allergies didn’t get any better”. Her dairy allergy went higher and the peanut allergy is very high now. BUMMER!

I felt like someone had punched me in the stomach, I was so disheartened… I immediately called my husband to give him the news. He was sad as well. We had, again, gotten our hopes up only to receive bad news. The truth is that even though you know that Food Allergies can go either way, you always want the best for your children. I have to accept our reality: Penny might never outgrow her Food Allergies. It is my job to teach her how to live in a world that’s not allergy-free and where not everybody is allergy-friendly. However, it is something that, with the right education and advocacy, can be achieved.

This is going to be a big year for Penny: she might go to preschool for the first time. What can I say? It scares me like nothing has ever scared me before. But, it is what it is. Of course, I will meet up with the school staff to talk about her allergies and establish an emergency care plan, and hopefully she will be comfortable in an environment where her allergies will be respected and she will be accommodated. After all, food allergies are a part of her life and she has to learn to live with them.

Empathy

One thing that I truly appreciate is empathy. So far, I’ve been blessed with amazing family members, friends, and neighbors who are great at being understanding and considerate when it comes to my children’s allergies. Whenever they visit, they try to avoid allergens at least 4 hours before coming over and never bring any allergens to my home. Also, they wash their hands and mouths when they arrive. If we are the ones visiting, they wipe surfaces to make sure there is no allergen protein residue and put away any food product containing dairy, peanuts & tree nuts. If they happen to have had contact with any of the allergens while we are present, they make sure to wash their hand thoroughly to make sure there’s no allergic reaction. Finally, if we have been invited to their home and they feel like offering us anything to eat, they are kind enough to call me beforehand and ask if we can eat whatever it is that they are offering.

On the other hand, I am grateful when someone that’s not willing to give up those allergens when we are around tells me about it. This way, I make sure we’re extra careful when meeting up with him/her.  I am never trying to be an inconvenience; I am only trying to avoid allergic reactions. But the mere fact that you are honest enough and let me know helps to keep my children safe.

Now, when one of my friends or family members goes out of their way to bring me an allergy-friendly product, it makes me happy. This is exactly what happened when we were on our trip in Puerto Rico. My mom’s friend, Angie, knew about Penny’s allergy and while she was shopping in Marshalls stumbled upon Dr. Lucy’s Chocolate Chip Cookies. These cookies are peanut, tree nut, milk, egg and gluten free. Its box says that they test for milk, gluten, peanut, almond, hazelnut and walnut traces in their ingredients and never allow those items in their bakery or warehouse, which gave me a sense of security when offering these treats to my children.  Oh! They’re also Non-GMO. ☺ A physician, who’s also the mother of a child with food allergies created this brand. She states in the cookie box that she built her own bakery to make these treats because she  “know[s] how difficult it can be to find high-quality snacks that taste great”. I agree, at least the chocolate chip cookies, have a rich and delightful taste. What can I say? The cookies were gone that same day. I can’t wait to find more of these delicious treats.

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To all of you that have been kind enough to accommodate my children’s needs, you know who you are, thank you from the bottom of my heart. You have no idea how much easier and less stressful this makes my day.  For me, it is not about convenience, but about not risking my children’s health and lives.

Summer Camp and a Complicated Birthday Celebration

Last month, I traveled with both my kids to Puerto Rico. One of the reasons for our trip was for the kids to be able to go to an awesome summer camp. For Paulo, it meant an all day experience, whereas for Penny it was half day. I’m not going to lie, leaving my food allergic kiddos in school/summer camp is a bit nerve-wracking, especially since Paulo is newly diagnosed and Penny is still learning to identify which food products contain her allergens.

To my surprise, Paulo was really good at identifying what he could or couldn’t eat and understood that he was not able to share snacks or lunch with anybody else. Penny was a different story. In her case, teachers had to be vigilant and extremely careful at snack time. However, they were really good at keeping Penny safe. They told me that it was a learning experience for them. They found it easy to avoid and keep Penny away from peanuts and tree nuts but were surprised with all the food products that contain dairy. They made sure that everybody washed their hands before and after snack and would carefully clean the tables, chairs and materials to avoid an allergic reaction. Overall, both kids had an amazing time and I am happy to say that both children had an allergy-free summer camp experience.

However, like everything in life, nothing is perfect. On the last day of summer camp, we celebrated Paulo, Penny and another child’s birthday. At first, when the director told me about the celebration, I was hesitant for it involved food and as a food allergy mom, that makes me a bit anxious. But at the end, I accepted because the director assured me that she would talk to the mom of the other child celebrating the birthday and would make sure that the celebration would be allergy-friendly. It was my responsibility to bake allergy friendly cupcakes and the other mom would only bring fruits and veggies.

Last day of camp came and everything was looking great. Until, all of a sudden, the other mom comes with a cake on her hands. My heart started pounding with fear and disappointment, and I’m guessing that I did not control my emotions well because as soon as she looked at me, she assured me that the cake was brought only so she could take a picture. I was confused. The only reason I had accepted to have the birthday celebration was because it was going to be an allergy-free gathering and now, this mom knowingly brought an allergen-full cake… Anyway, I trusted that she was going to keep her word and continued with our day. The party was awesome: kids were enjoying the bouncy house, the water slides, and the allergy-friendly snacks.

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It was time to sing Happy Birthday, so we all gathered around the table where I had beautifully placed the 70 homemade allergy-friendly mini-cupcakes and we all sang the birthday song. We shared the cupcakes with everyone and were having an awesome time when all of a sudden the “picture cake” was out. They took the pictures, I looked away, and when I looked back there was a mess made out of the cake’s frosting. I started getting anxious, trying to keep Penelope away from the cake area when I noticed that the mom was cutting the cake and giving away some pieces to some children. This is when I went from anxious to upset. I couldn’t believe my eyes. This mom, who had been told about both my children’s allergies and their severity, and who had agreed on not bringing any allergens, not only brought them, but knowingly was also putting my child’s health and life at risk. I was too upset to talk to her without making a scene, so instead I took our stuff and my severe allergic child and left.

I know and understand that the world is not allergy-free and that not everybody understands the consequences that a little bit of an allergen can cause (in our case, anaphylaxis). In this case, what disappointed me was that this other mom knew beforehand about the allergies and still went on and brought allergens. It saddens me that people can’t see that where their child’s inconvenience starts is exactly where my children’s life is put at risk.

Both my children had an amazing summer; it was their mom who got scared and angry at other people’s lack of understanding. Help me out to spread awareness, so empathy can be achieved.

For more information about food allergies, visit:

Food Allergy Research & Education

Food Allergy & Anaphylaxis Connection Team

Kids with Food Allergies

American College of Allergy, Asthma & Immunology

American Academy of Allergy, Asthma & Immunology